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#1
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Hi everyone,
Sorry I'm so late in my update. I have been on Mr Toad's wild ride for a Long time. I have had plus's and minus's for almost three months, first the plus is that I am growing hair on my bald spot on my head and that's the truth! I have also noticed an increase in my blood OX from the low 90's to the high 90's, that is still using my O2 on 4ltrs. When I try dropping my 02 to 3 ltrs my 02 still goes down to the 80's within about 20 minutes. I also feel much better and stronger and not that wiped out feeling. About the only minus I can report is I am still SOB I still have to turn up my 02 level to 8 or 10 Ltrs when walking in the house. I still having trouble with the shower MONSTER! Help Bev!!! I would like to thank Barbara and Jeanine for writing their book, because everytime I have trouble I go to your book for information and feel much better when I see that you had the same problems. I what to thank Rose and Norm for their inspiration and words of incouragement, also I still have trouble staying awake for all of the CD HA HA. I'm still taking all the supplements and sticking to the special diet. Also I am taking the HGH pills. Pardon my spelling! as I need a spell check real bad. I hope everyone is doing real well and is getting better everyday. Ross
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Had treatment October 4th, 2007 Ross |
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#2
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Ross - I am so glad to hear from you. Mr. Toad really is inconsiderate, isn't he? One thing you didn't mention is the PowerLung. I do hope you have gotten yours fixed and are back on the program with it because I think it will help reduce your SOB. Keep at it. The first step is to increase your energy and stamina so that you will feel like doing more. I will slap Mr. Toad around a little for you if that will help. Thank you for your very kind words about our book. We truly appreciate it.
Also, make sure you take the GenF20 product about one hour before lunch and one hour before dinner. The maximum effects are produced on an empty stomach.
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First treatment in 2007. Pioneering ever since. Barbara |
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#3
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Hi.....This is my first time talking to anyone one the forum. Reading your e mail was the first time I had seen of anyone referring to how hard it is to shower. Drives me crazy, but can t get to excited, because of SOB! I want to have the treatment but have to get my courage up. Thanks to everyone who has had courage to go ahead and get better. LaRae
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#4
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LaRae - I am glad to see you post. What is it about showering that is so hard for people with lung problems? It is one of the most difficult things there is to do even if you go in with your nose hose. It is one of my unfondest (is that a word?) memories. I am now able to get up and shower without O2 and take my time about it. I can even take a steam bath if I want to. We have a built in steamer. There is no way this was possible pre stem cell therapy. I then get out of the shower and can dry off, get dressed and get my make up on before I put my O2 on to go downstairs and start feeding the hungry mob at my house. In fact, I now feel better if I take a longer shower than a quick one. It used to be, I was so out of breath even with my O2 on in the shower that I could barely make it through a couple of minutes without feeling like I had to sit down some place. I am glad this was brought up again. It makes me realize how bad I was and how much I have improved. I wish that improvement on you too LaRae and all the others. Stem cell treatment may not be perfect and I am not able to run marathons, but it sure beats whatever else is in second place.
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First treatment in 2007. Pioneering ever since. Barbara |
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#5
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LaRae, Singin' in the shower. What a luxury that will be. I was scared too but decided to at least fill out the application and actually put it in the mail. The phone consultation with Dr. F. came soon after. I'm not the first to say it, but I thought what the heck "what do I have to lose except money!" Once I decided on a date it seemed time whized and there I was on my way to San Diego. Now,it seems like a dream. I DID IT! Showering is still a problem - too early to experience improvements yet.
Pat Chronister _Had stem cell treatment Dec. 6, 2007__________________________ |
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#6
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Quote:
Now it is time for you to simply try to relax, and to ask others around you to help you relax. Now... When you figure out how to make them do it, please let me know how you accomplished it!!
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4 Autologous treatments to date. Harv |
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#7
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Ross, I'm Happy To See You Posting, That Means You Have Improved Enough To Get On The Computer--the Shower Will Come Soon---in The Mean Time I Will Take An Extra One Just For You!!! Lol The Object Of The Cd Is To Teach You To Relax, So I Guess The Dr. Is Doing The Trick, You Relax So Much You Fall Asleep!!!
Larae---before Stem Cells, I Could Not Take A Shower Without Gasping For Breath, During And After, Now, I Am Able To Enjoy My Showers, Still On 3lpm 02, But Not Gasping--- Pat, Your Good Shower Is On It's Way, As Is Many Other Good Things----lately I Have Been Kind Of On The Down Side, Nothing Serious Just Not As Good As I Want To Be---I Am Happy I Went For Treatment, And Happy To Have Met All These Wonderful People. May 2008 Bring Better Breathing To All Of Us----
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ROSE HAD UC TREATMENT OCT.4, 07 Autolugous Stem Cells 5/09 |
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#8
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I think Rose has pointed out something very important. She is feeling on the downside. This is such a common occurrence after stem cell therapy that stem cell doctors, in my opinion, are very remiss in not informing patients of this. It just happens. We become impatient, we start to question if we are at all better. Did we throw our money out the window? Will we never be well? It all plays on the mind and it requires a lot of self discipline to continue with the post stem cell protocols, given to you or not. This means eating well, trying to get some exercise and relaxing via meditation, relaxation tapes and cd's, posting on the forum for support, etc. The stem cell doctors and clinics have not really gotten beyond the treatment they give a person. They don't realize that many people go home with fears and doubts and more questions. They are pioneering also and maybe some day there will be more understanding of the emotional side of this therapy. A lot of it has to do with not knowing how far the treatment will take you in your quest to get well and also being impatient to feel good again. Jeannine and I wrote our book to try to help people understand that this is not a magical overnight cure-all. The forum was started for this reason also. Please, if you feel blue, post away. It will help. I am having a down week myself and it helps to know that I have friends on this forum that will cheer me up. This goes for you too, Rose. You are a very special lady who is always ready to help others. You have a natural cheer about you. Thanks for that Rose. 2008 will be a good one. I just feel it.
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First treatment in 2007. Pioneering ever since. Barbara |
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#9
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Barbara--thanks For The Very Kind Words---i Am Nothing Special, But I Do Care About Everyone, And I So Want Everyone To Be Able To Breathe Better, And Feel Better---
For 2008 I Wish You All Better Breathing, And Really Great Showers!!!!!!
__________________
ROSE HAD UC TREATMENT OCT.4, 07 Autolugous Stem Cells 5/09 |
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#10
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Dear Ross I am so sorry it has taken me so long to get back to you but I have been sick I know you will make it into the shower soon. I had a set back as far as the shower, I had to sit in the shower first time in a long time but like I said I have been sick but I do believe they are working because I bounced back so much faster this time. each of us are going at a pace that our bodies are comfortable with so take care and give yourself a break it will happen for you .unlike Rose I don't have all the energy for cleaning like she does but I don't mind that part you do alot more walking than I do so you are conditioning your body for the event. It still feels real strange to not be sob and enjoy the water not rubbing it in I hope your day comes soon
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Beverly in FL Had Treatment Oct 4,2007 |
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