question

[carmen868]

I have been on O2 for the past 2 weeks after my hospitalization and i want to get back to the way i was before, meaning no O2. have any of you had this expewrience and were able to get off it and get better without the stem cells or once you get on it is it for life? I havent been able to get my sat levels over 90. please share your experiences as i am very worried and depressed.

[barbara]

Are you doing any exercising?

[carmen868]

i hardly do exercise i try to walk but find myself looking for the o2. i need help taking a bath. i just want to be able to go back to my normal sats. doctor said not to stay long without the o2. am eating well tho.

[barbara]

Do you know if your infection is all gone? Have you gone back to see your doctor?

[Jeannine]

If your Sats won't go over 90 then you should be using oxygen because they drop even lower if you move around. Being in such a state that you are unable to even shower, then use it.

By not using it you are causing damage to your organs. It may take a few months for your breathing to improve and maybe you won't need oxygen but using oxygen is much better than being bedridden. If I didn't use it I would be bedridden. I didn't want to use it at first either, but the alternative is worse for you.

[karl wagner]

hey carmen , i tried some of my nephews 5 hour energy the other day and noticed an improvement in my sat's. As far as i know its all vitamins , mostly b12. I just sip some about three times a week and i don't need as much o2 on the treadmill. It might be worth a try some lung problems are vitamin deficiencies.

[barbara]

Good point Karl. Also, Carmen make sure you get enough D and C.

[Bev12452]

I have found that when I feel like I can't fight my way out of a wet bag I use my amino acids I use a granular type and put a 1/4 tsp under my tongue it seems to help I had a hard time swalllowing the large tablets

[carmen868]

if youre on oxygen how do you get around? what about when you go out? the portable o2 tank here lasts only about 2 hrs. i hasve been almost in bed all the time except when i go to the bathroom.

[Bev12452]

I have the portable tank but I have a conserving device on it which means that the o2 is only used when I breathe it isn't a constant flow your o2 supplier should have set you up with one call your pulmonary dr on monday and ask him for one that way you will have some mobility also ask for a 50 ft hose if your conserving device is centrally located you can get around I know your are scared but the weakness will go away we have all been where you are right now when I first came home from the hospital I couldn't walk up the stairs to get into my house and then I couldn't walk up the stairs to get to my bedroom I don't know if it was the steroids or laying in bed or both but eventually it got better take it one day at a time