Jeannine

Hi,
You guys better watch the weather-- They are talking some nasty stuff for the NE. That is what we usually have down here.
Stay safe,
Everett

Bev

I was real weak after my 16 day hospital stay last Feb for ulcerative colitis. I left the hospital with my legs so weak I couldn't walk alone. To strengthen them, I used to stand at my kitchen counter and read a book for 20-30 minutes each day and also lean on my bed and stand on my tiptoes for 5 seconds at a time and would do this 20 times each morning. After two weeks I could climb stairs again. The key is to stand as often as possible even if you lean on the kitchen counter. I still read magazines every day while I drink a cup of tea while leaning on my kitchen counter. It will strengthen your legs without too much effort

I got the call yesterday I didn't make the cut for the transplant sitting outside watching tv cell phone rings it was Dr f he sounded real positive about helping me and have a tentative date around july one door closed but a window opened since I live here in Florida I will be able to do follow up in his office so I have put the transplant on the back burner I will work to strenghten my legs but it will help either way I have a year to go back to be listed but Dr F said by Dec I will be feeling great shower here I come he als said there is something coming out about casey and Dr Shemesh waiting to hear about that Dr Shemesh was the Dr I went to see in Tampa I met him out in California when I went for treatment just being nosey anyway will keep in touch again thank you Bev

I get a kick out of the exericse they want us to be able to do before they will give us a transplant. If I could walk a mile I wouldn't need a transplant. I am the only breadwinner right now too. My husband lost his job 18 months ago and I still work full time because I have no choice. Good luck with everything and keep in touch.

thanks so much for your help it really depends on the cost my husband doesn't work and my dad lives here too so I am the main bread winner and I am on disability but I beleive it will workk out I was given a three month extension my legs aren't strong enough they want me to be able to do leg push equal to 80 percent of my body weight I am at 67 I guess I have some work to do but I feel like a stone was lifted off my shoulders thanks for helping Bev

I think the same way about transplants. They have no problem forking over thens of thousands for transplants.

If you want my advice I would go for the treatment with Dr F and if you don't have enough improvements after 6 months, then sign up for the transplant. That's what I plan to do because I can't wait much longer either for a cure. MY FEV1 is around 25% and I would rather live a normal life for a couple of years than to live another 5 or more feeling like this.

My email is BEVANNLE@aol.com thank you so much I look forward to hearing from him and the phone number is correct I just don;t understand how my insurence has no problem spending 350 000 for lung surgery and won't let me have the money for stem cells the hospital checked my insurance and boy I have no problem with them or with the many drugs I will have to take thanks again

Bev
Dr F contacted me by email late last night and this is what he wrote.
Dear Jeannine,

One of your friends Beverly with COPD from Ocala,Florida tried to reach me yesterday.However,I was extremely busy yesterday and I could not call her back.I am seeing patients right now in the office and my schedule is really tight today too. Please tell her that I will contact her this weekend.

Is her phone number 352-789-3053? Do you have Beverly's email address.

Give me your email address and I will forward it to him so he can contact you.

He didn't call me back so I am bummed will lwt you know if I hear anything thanks for your help I just wish we could sue casey and get some of our money back oh well have a good day I have to speak with the transplant team about my desicion pray that I make the right one

Let me know what he says and his current price too. I have people asking me but don't know his current price. Good luck to you.