Hi, my first time on this forum - well first time putting a post. Just firstly wanna say a great thanks to Barbara, who has been verey helpful - your a gem.

My daughter - 2 years old, has had a sudden hearing loss. She was not born like it - it just happened in last 4 months. The ABR was bad - around 85DBHL billaterally. But she had clear working Cochlear Microphonics - her cochlear is perfect. So the Medical Doctors wanted to do a MRI Scan to see if there could be a cist,tumor etc....

Wow, been a long time since my last update. I am doing well, no major changes. Really hot here in Fl and that is affecting me worse than ever. I feel my stem cells results are mixed. It seemed to help at first but now I feel a bit worse. My rt side continues to be weak and I use a cane more around the house. I started LDN 4 months ago and I have been on the max dose of 4.5mg for two months and so far no major changes, good or bad. No side effects, perhaps vivid dreams but I had that anyway. Starting...

I last posted in early May. I have just returned from the Mayo Clinic where I had my PFT's repeated. I have the tests done annually. My results are not significantly changed from 2008. Although I have severe emphysems, if I don't get worse, I consider the results an improvement. I do think the stem cell treatments, Spireva, exercise, Stem Triton and prayer all account for the lack of decline. I am always relieved to find I am the same. I plan another stem cell treatment suggested by Barbara...

Hi Tony,
I'm a lung fibrosis patient from Malaysia. Read that your dad completed the stem cell treatment. I'm interested in undergoing the procedure. How is it working so far for your dad?
Farul

anyone been to StemGenex in miami I talk to them cause im looking for cavernous nerve regeneration treatment its gonna cost around 8,000 for treatment and its a direct injection he said