View Full Version : I'm so glad I found y'all

03-18-2010, 10:30 AM
Howdy Y'all, Yep I'm from Texas. I am so glad i found y'all. I have been reading the forum non stop for the last couple of weeks and ready to get moving. I have spent so much time on my computer the last few weeks and I am on overload and a bit overwhelmed. The one thing I am sure of is that I will have treatment soon. My pulmonary specialist poo pooed the idea but he poo poo's everything I do (and I do a lot) and then he can't figure out why I do better than his other patients. Well Duh??? The same old how are you doing? are you ready to revisit transplant? see you in 4 months. I plan on seeing my Primary Physician in a week or two and getting her on the stem cell boat with me. She is a DO with a holistic approach and I feel sure she will support me in this decision. She has helped me more than any of the 3 Pulmonary Dr.s I have been to. I have joined ICMS and will have her do the same. I have signed the petition for Daxas and have listed both on my facebook page and have recruited several others to do the same. I just want to get better and I believe I can. I am so excited to have found you and your forum. Finally I feel like I am not alone in my decision to not rush into a transplant. Having them rip my lungs out and spending the rest of my life pumped up on drugs just does not appeal to me. I know several who have gone that way and several on the list that can't wait to get their new lungs and I support them if that is what they want but I just can't commit to that until I have exhausted every other option. I look forward to getting to know everyone here and learning and sharing more. Barbara and Jeannie you are truly angels for all y'all do. Thank you so much, Connie

03-20-2010, 06:47 PM
Awesome Connie So glad to meet someone sho excited about this treatment as I am need anything just let me know.
Tami Milam

03-21-2010, 03:09 PM
Welcome Connie! My husband has COPD, and he is planning on getting stem cell therapy this summer. Right now, we are doing the same thing you are - reading every thing we can and trying to learn as much as possible. This forum has been immensely helpful! - Lisa

03-21-2010, 07:36 PM
Thanks Tami and Lisa for the welcome. It appears that the research and decission will be harder than the treatment.:confused: Do we get a diploma when we complete our research? Hopefully the reward will be in the improvement we get from the treatment we choose.
Big Love, Connie

03-21-2010, 08:02 PM
Connie I think our research is on going and going. We are like the Energizer bunny we never stop. I have been at since 09/07 for my daughter Ava Grace.