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Buddy74
04-12-2009, 09:14 AM
As I mentioned on a previous thread I will be meeting with Dr. Grekos of Regenocyte in Bonita Springs, Florida on April 15 to discuss details relating to my health and impending journey to Santo Domingo,Domican Republic. I have had discussions with Regenocytes Director of Patient Services, and with the COO and Dr. Grekos at a very informative seminar held in Naples, Florida. I have submitted all records asked and to date they have been very cooperative. Assuming there will no obstacles I will be picked up at the airport and transported to and from the hotel and hospital by a bi-lingual associate and I will be staying at an Intercontinental hotel that looks quite nice as taken from the hotels web site. I am looking forward to my journey and I hope my experience will be fruitful in helping me with my heart condition. I have stage three Ischemic Cardiomyopathy with total atrial fibrillation. I will keep you informed as I journey on my Road to Santo Domingo!
Buddy

barbara
04-12-2009, 10:00 AM
Buddy - What nice news for this Easter Sunday. I wish you all the best. The Dominican Republic is one of my favorite countries to visit (or it was when I could still fly on an airplane). They are baseball crazy and friendly to us foreigners. I look forward to hearing more from you.

Buddy74
04-17-2009, 12:03 PM
I travelled to Bonita Springs,whiich is just about a one hour drive from my home in Ft. Myers Fl. to meet with Dr. Grekos. It was obvious upon my arrival that he had a thriving cardiology business in addition to Regenocyte. He has two separate teams handling each area. My meeting and discussions with Dr. Grekos went quite well. I had about 15 questions regarding the Stem Cell procedure and he patiently went through each of the questions with me and added additional information.He gave adequate time and attention to my queries. He is a very personable individual and I believe he is a cut above other cardiologists that I have known. He made it clear that he will be my Stem Cell physician. He used to work with my current cardiologist whom I am satisfied with. Dr. Grekos knew my entire history quite well based on information provided by me (I get copies of everything) and by my health care providers. He obviously studied my medical history and when a question arose about my previous treatment he immediately contacted an individual with regard to that matter for an adequate understanding. That's one of the benefits of living within the proximity of my healthcare providers.
I made the decision to undertake my journey to Santo Domingo and if all goes well my procedure will take place sometime in early June. I will still have to undergo numerous tests over the next few weeks before my journey begins.
There is a great deal of paperwork that has to be filled out but I suppose that is par for the course. It was recommended that I increase my daily dosage of CQ10 (Ubiquinol) to 400 mgs in two daily segments,and add l- ARGININE (a protein Amino Acid) 1,000 mgs. and L_CARNITINE (an amino acid)
also to 1,000 mgs. I have some detailed information on all three of these vitamin supplements and they seem to well recommended for my condition.
As I mentioned, I am looking more for a better quality of life rather than longevity, however, I will take both! I see this journey as my best if not only chance of attaining that goal. I also have a great desire to dance a Waltz with my lovely Carol once again. I believe it will happen! I shall keep you informed as my journey to Santo Domingo continues. Have a great day!
Bud

barbara
04-17-2009, 02:43 PM
Buddy - I hope you get to dance all night with Carol after your treatment. I think the waltz seems a little tame, however. After treatment with Dr. Grekos, I think you will be doing the Limbo or break dancing. Thank you for posting the details of what you are doing. There is another member that is going soon and she had a problem finding ubiquinol. We now offer it on www.seachangeforlife.com for Dr. Grekos' patients. We offer a high quality brand. June will be here before you know it Buddy. You are indeed lucky to live so close to Dr. Grekos' office. It will make things much more easier for you than to be dealing with everything from a long distance. Now, that you have introduced Carol, can I ask if she will be going with you to the Dominican Republic?

Buddy74
04-17-2009, 05:16 PM
Thanks for the note Barbara. Yes, Carol will be going with me. I wouldn't go without her!
Bud

Mysty119
04-17-2009, 05:45 PM
Have a safe and wonderful trip----and a most successful treatment!!

Chas
04-18-2009, 09:04 AM
Buddy

I greatly appreciate the clarity and detail of your messages. I wish you the greatest success. I too used to enjoy dancing with my lovely wife. I hope you will continue to provide detailed descriptions of your interactions with Dr. Grekos and your treatment results.

Chas

Buddy74
04-30-2009, 04:00 PM
Unfortunately my journey to Santo Domingo is now on hold. Everything was set in place regarding my tests etc.and was scheduled for June 9..However; I had some slight pain on my right side and I thought it might be an ulcer. After undergoing some testing it was determined that I had Gall Stones that needed immediate treatment. I was quite unhappy to receive this news but surgery is my only problem. The surgeon tells me that the problem is because I have an ejection fraction of about 20 and require use of general anesthesia and my age factor, the procedure would be somewhat daunting. I decided to put everything on hold until I had recuperated from the gall stone procedure. The surgeon would not perform the surgery unless I had a written notice from my cardiologist that he could undertake the operation and a heart specialist was made available. Although I am not in any major pain from the gall stones it would be foolish to go ahead with the stem cell procedure. There is a two month window from any surgery before stem cells can be implanted and a six week window after the stem cell procedure as the stem cells would tend to move toward the area of surgery. It is not a happy situation..but then again..you never know what is around the corner. I shall keep you informed! My journey will continue!

Mysty119
04-30-2009, 04:59 PM
Awww, Buddy, I feel so bad for you. But I'm confident you will come through this okay and when your body is ready, will be on your way to Santo Domingo anyway!!!! My best to you.

barbara
04-30-2009, 05:17 PM
Dang it all Buddy. Hang in there. I thought there was a new way to laser out stones, but it may be kidney stones I am thinking of. I am very sorry that you won't make the June date, but stem cells do migrate to the point of an injury so it is best to wait as you mentioned. Thanks for letting us know.

Chas
04-30-2009, 06:56 PM
Buddy,

Your messages are so clear that I almost feel the difficulties you are undergoing. Keep us posted, we will be pulling for you.

Chas

Buddy74
05-20-2009, 05:38 PM
Well my Journey to Santo Domingo did indeed hit a road block. As I mentioned previously, it was determined that I had some gall bladder problems and that the only resolution would be to have the gall bladder removed. Although I thought I was looking at Laparoscopic Cholecystectomy (three small incisions) which is the predominent procedure in 95%of today's Gall Bladder procedures. Unfortunately it wasn't my day and last wednesday once the procedure started it was determined I would have to go with the open incision which now contains some 26 staples and would require five days of hospitalization instead of being able to leave the day after the Laparoscopic procedure and a few weeks of recuperation. Central to this procedure is the danger inherent in my condition toward general anesthesia. Unfortunately I had to be placed on a ventilator when at some point after the operation it was determined I had stopped breathing. My defibrillator kicked in and pulled me back from the abyss. Having the breathing tube down my throat for four days was not one of my favorite memories, particularly the almost hourly irrigation projects. Anyway, I am now at my home in Ft. Myers overlooking the water and recuperating. The Gall Bladder situation will become just another somewhat painful memory and I will continue on my journey to Santo Domingo. I am still a bit leery about a few of the tests I have yet to take as one wonders just what lys around the corner.
I contacted Dr. Grekos' office and told them that I was recuperating and that my spirits are once again high and that I am looking forward to continuing my journey. My stem cell procedure was to take place on June 3 but that of course had to be delayed as one has to wait at least two months after this type of surgery or else the stem cells I am told will gravitate to the area of previous injury. I expect Dr. Grekos and his staff will work out an outline for testing and a procedure date. (Just in time for the Hurricane season.) However, as I mentioned, the gall bladder situation was just another bump in the pathway of life and a slight detour on my journey to Santo Domingo. I will keep you informed as my journey continues.
Have a great day...and remember, nothing happens unless you make it happen!.
Best Bud

barbara
05-20-2009, 09:26 PM
Buddy - You have such a good attitude. You really do have the right frame of mind to help your body heal. It's very important. Once we start training for the Olympics, I want you on my team. I really do enjoy hearing from you. You have so much energy in your post even though you have been through a lot lately. We may have to call you Hurricane Buddy. (You're a good hurricane - just a lot of strength, but no damage done). I wish you all the best. Get well soon.

Buddy74
06-22-2009, 06:37 PM
Well my journey to Santo Domingo has been re-connected. My schedule for the stem cell procedure in Santo Domingo has been scheduled for JUly 15 with the blood draw scheduled for July 7.
Today June 22, I had my pre-cell blood work done. About 14 vials of blood were drawn to determine all the variables of my blood. In addition I had a MUGA Scan(Multi Gated Acquisition) for short. I understand that this procedure measures how well your geart is functioning as a pump, much like an Echo, but more accurately. Usuallly a radioactive substance is injected into one's blood stream which attaches to red blood cells which can be seen through a gamma camera, a large oval device placed directly over my heart. Because my heartbeat is highly irregular, (I am in total atrial fibrillation,) pacer clinic individuals were utilized to push my heart rate at a constant 100 beats to create a non resting EF reading. My resting Ejection Fraction reading was 22.
I will be back on June 30 to take a second phase "exercise" CST and will report on that procedure. I also had an ECG and will be wearing a Holter for a 24 hr period. I shall mail it back to Regenocyte. I also had an ICG (Hemodynamic Status Report) which is being sent to my cardiologist. There was somewhat of a problem with the ICG due to my irregular heart beat that moved my blood pressure up and down with different readings even though I have an implanted CRT.
I will also have a Pet Scan on June 25. Regenocyte seems to be pretty complete in establishing baseline information which will be measured against future tests after the Stem cell procedure. I hope the Caribbean area renains free of storms or other impedients as I look foreward to the conclusion of the process hopefully with positive results. My heart failure has progressed, there is no question of that, it;s the nature of the disease. However, I am not down hearted and I am still looking forward to that Waltz with my beautiful Carol. Have a great day!
Bud

danny
06-23-2009, 08:17 AM
Buddy,

If you can get results like the article posted today... it will all be worth the wait! Good luck!

http://www.stemcellpioneers.com/showthread.php?t=1870

Danny

barbara
06-23-2009, 04:28 PM
Since this is just a press release, it will be far more informative to hear from Buddy when he returns. I compare press releases of this nature to dressing up one day a week. I want to know what the person wears the rest of the week!

hlichten
06-23-2009, 10:29 PM
Since this is just a press release, it will be far more informative to hear from Buddy when he returns. I compare press releases of this nature to dressing up one day a week. I want to know what the person wears the rest of the week!


Absolutely agree with you, while still wishing the very best results for Buddy.

Buddy74
07-08-2009, 10:44 AM
Hi: On Thursday, June 25th I ha a PET Scan (Position Emission Tomography).
This scan is a unique type of imaging test that helps see how the heart and tissues inside my body are functioning. The test involves a very small dose of a radioactive chemical, called a radiotracer, into the vein of my arm.The tracer travels through my body and is absorbed by the organs and tissues being studied. I was then asked to lie down on a flat examination table that is moved into the center of a Pet scanner, a doughnut shaped machine. I am glad I am not claustrophobic and If you ever have had an MRI it is in the same order. The difficult part is that it takes two and a half hours of preparation for a half hour scan.
On June 30th I had a CST with a pacer specialist raising my heart rate to desired levels. On July 7th I had my blood draw I believe it was about 12 cc's. After delicate packaging a courier picked it up to take it to Miami and from there to be flown to Israel. I also had an Echocardiogram which showed my ejection fraction at about 21.
Carol and I will be leaving Ft. Myers on Monday July 13 and be taken by Limo directly across Alligator Alley through the Everglades (about a three hour trip) to a Holiday Inn at the Miami airport. We decided to leave a day early and not take the Ft. Myers to Miami Flight as the timing was too close and subject to airport delays even though the Ft. Myers flight leaves early in the morning. On Tuesday, July 14 we will a take a plane to Santo Domingo (about a two hr and fifteen minute flight) and we will be met at the airport by a bi-lingual driver who will be assigned to us by Regenocyte. We will be taken to an Inter-Continental hotel and the following day, July 15 the stem cells will arrive from Israel on that morning and my procedure will take place that afternoon. If all goes well then I should be returning to Miami on the 17th of July and driven to our home in Fort Myers. My journey to Santo Domingo will be complete and my next reporting will be about the results of my journey and I do hope the results will be positive.

Kaye
07-08-2009, 04:54 PM
I am so excited for you and your wife. I just wanted to wish you all the best and am looking forward to hearing from you soon. You will be in our thoughts and prayers. YEA - GO BUDDY!

barbara
07-09-2009, 12:05 AM
Buddy - I will be thinking about you and looking forward to your return.

danny
07-13-2009, 10:16 PM
Good luck with your cells today...

Buddy74
07-24-2009, 04:35 PM
Well...I have completed my journey to Santo Domingo. We decided to leave a day earlier (Monday July 13) and forego the flight from Ft. Myers to Miami as the flight requirements were too tight and my breathing is not quite ready for some stressful travel situation. We had a limo pick us up at our door on Monday and as we drove along "alligator alley" through the everglades on a straight as an arrow highway, I was as alway, fascinated by the Everglades. We arrived at a Holiday Inn (I left feeling no smarter). We were then taken to Miami International on Tuesday July 14 and into a world of total chaos. It's like being in a foreign country. A wheelchair awaited me and we eventually made it through and progressed on with our two hour flight to Santo Domingo. Another wheel chair awaited with an attendant and we went through customs etc fairly well. Our driver, bilingual woman and who would serve as our guide was waiting to us and another couple from Fargo N.D. to our hotel. I was surprised at the young age of our partners....late thirties. The young man has Pulmonary Hypertension a lung disease I am familiar with as I have symptoms of the disease myself. There is no known cure and he was there for lung therapy with Stem Cells. Much too young for such an adventure.
We arrived at a lovely Inter-Contintal hotel located right by the water and our rooms were quite nice. A Casino was located adjacent to the lower level.
My stem cells arrived from Israel at 11:30 A.M. and by 2:30 I was in the operating room. I was told that they had extrapolated and replicated from my blood almost 39 million stem cells which was somewhat above the norm. I was told that if I dispensed with the anesthesia it would cut the operational time in half. With the knowledge that this was an internal procedure I decided to follow that path. There was a surgeon, two other doctors and an anesthesiologist in attendance...the catheter was introduced into the main artery of my right leg and I was told to remain quite still. The difficulty I had was my aching back, a leftover from an airplane crash many years prior, it bothered me from having to ly totally flat but I was quite relaxed and stayed still. The surgeon made 34 injections into my heart muscle, much of it scarred and the procedure was over in about thirty minutes. The only complaint I have is that I was taken to a recovery room where a Doctor would stay all night with us. The room was quite small, had four beds and the usually sliding curtain. Two of the patients snored all night and I felt like I was in a saw mill with hollow walls. I expected better! The next morning I was released and taken to my hotel room where I slept most of the day. Our guide took Carol and the wife of the other patient out to shop, sight see and have dinner and made something of a vacation for them on Wednesday and Thursday. On Friday we flew back to Miami..we were picked up by our driver and made it home. My journey to Santo Domingo had ended and I now await the results of the stem cell procedure which I hope will be positive. My Ejection Fraction has remained at 20 and I have been told it will not go up. I hope this procedure changes that.
There is however some travil in each life and the fickle finger of fate once again knocked at my door. I went for my Pacer check up on Tuesday July 21. (I have a bi-ventricular pace maker, defibrillator and CRT). I learned that the lead or wire that was placed in a specific artery some three years ago in my left Ventricle was not working. That lead "synchronizes" the inflow and outflow of blood through my atrium and my ventricle. It may account for the fact I was extremely tired with more distinct breathing difficulties of late. It appears that I will need surgery to try to correct the problem. This surgery is somewhat complex which occurs anytime you have to go through the maze of a ventricle. I will meet with my Cardiologist and the surgeon next Thurday, July 30th to explore my options. I have already made up my mind that I will not have the surgery within the next six weeks as I am told it would negate the stem cell procedure as the stem cells could gravitate toward the area of the surgery. It is a little bit disheartening but it is what it is and I will do whatever is necessary..but not over the next six weeks regardless of the consequences.
I hope I have not been too detailed and I shall keep you informed as to my situation and hopeful progress. I am looking forward to a positive conclusion..with some degree of trepitation.
Best Bud

barbara
07-24-2009, 06:43 PM
Buddy - The next time I have a "blue" day, I'm going to get in touch with you. You take everything in stride. What a great attitude. I think it will help in your recovery. I am glad to have you back. Traveling is a real nightmare for most of us. That's another reason I get so upset about the FDA and their lack of caring about us in this country. You sound like you did well. Lying flat on the back is not an easy task for me either. You made your mind up to do it however, and it paid off in a good procedure for you. Please keep us posted as to how you are doing. I too would hold out for the work you need done as long as possible. How unfortunate the timing is, but hopefully the stem cells will make you stronger and more up for the repair procedure you need.

Buddy74
08-15-2009, 09:50 AM
Next week on August 18th I will heading for Regenocytes location in Bonita Springs, Fl. about an hours drive for me. I will have some BLOOD work, an ECG, ICG, HOLTER and an ECHOCARDIOGRAM. I will then meet with Dr. Grekos on August 28th to go over questions, details and evaluation. It has been slightly more than four weeks since my stem cell procedure. I have noticed some improvement in my breathing but nothing dramatic. I hope that as time passes I will be the recipient of some better results. I will keep you informed after my meeting with Dr. Grekos.
Best Bud

barbara
08-15-2009, 02:09 PM
Buddy - Thanks for keeping us up to date. I sure hope you see some improvements. Let us know what you find out after all the testing.

Buddy74
08-30-2009, 10:50 AM
Hi: I met with Dr. Grekos of Regenocyte on August 28. Clinically it appears that I have shown improvement in some areas of my heart function. I had been told by other cardiologists that my ejection fraction would most probably not get past my current EJ of 20 which has held for quite some time. Over the first six weeks it has risen to 25, not a dramatic climb but certainly encouraging. The goal with regard to ejection fraction is to reach a reading of 40 which may be a stretch in my case. In addition I have noticed my breathing has improved but nothing dramatic as yet. My walking mobility also has improved. I still have fatigue and lethargy but I am looking for improvement in this area. I am told that I had 39 million of my own stem cells injected into my heart, 34% were specialized stem cells extracted to work specifically on the heart muscle. Overall I am enthusiastic over the fact that I expect to improve over the next few months. To what extent only time will tell. But it opens the avenue of hope. On the negative side, it appears that my Gall Bladder operation (the old fashioned way) and my subsequent code blue which required tubes out down my throat may have weakened my lungs further and I now have Pulmonary Hypertension with a reading in the mid forties. This of course is a serious condition, however it is hoped that the stem cells wil help to bring this reading down. I hope so. And so it goes, I am now a stem cell pioneer with a new hope for a qualitative continuance of life, even if it may be a short one. My spirits are high and I lead a good life with some hills still to climb. Good luck and best wishes to all!
Bud

barbara
08-30-2009, 01:51 PM
Buddy - You write the most inspiring posts. You really do. What a pioneer you are. I am very happy to hear that there has been improvement. Keep us informed about the PH situation and continue to improve. Little things add up.

Buddy74
09-06-2009, 10:12 AM
I am now completing my 7th week post Stem Cell Procedure through
Regenecyte and Dr. Grekos. I have noticed a definite benefit to my breathing although my fatigue factor is about the same. I have stopped using a "walker" and yesterday evening Carol and went for dinner at a yacht club we belong to and I did so without the use of a cane. I still have the issues of Pulmonary Hypertension with readings in the forties and total atrial fibrillation. However, I am buoyed by the fact that my breathing has definitely improved and I am looking forward to further gains due to my stem cell implantation. I shall keep you informed as to my progress.
Best..Bud

barbara
09-06-2009, 10:21 AM
This is great news Buddy. That has to make you feel better. You know we are all rooting for you.

Buddy74
09-28-2009, 01:53 PM
Hi: Well, it's been a little bit more than 10 weeks since my stem cell procedure and some of the results are quite interesting. Prior to the procedure I had trouble moving 10 feet without breathing heavily. As of today my breathing is vastly improved and I have been riding my stationary bike for 45 minutes each day to try and recondition my body. I no longer use a walker and rarely use my cane. I will be visiting with Dr. Grekos at his Bonita Springs, Florida office during the middle week of October where I will undergo testing to see where I stand from a medical point of view. It is hoped that some of my base readings will have improved from when they were last tested in June. It would be nice if my Ejection Fraction at some point could reach the 40+ area from my22 base line reading of June 22. That may be a stretch.
As I mentioned previously an hour after my Gall Bladder operation of May 13 I stopped breathing and my defibrillaor brought me back. During that happening the wire leading to a an artery in my Left Ventricle that was providing blood flow resynchronization, a procedure that provides electrical signals that keeps the right and left ventricals pumping together. I was told that to resynchronize would be a major operation of six hours whereby they would go to the back of my heart and implant a wire and general anesthesia would be used which would require tubes down my throat etc. The procedure would also necessitate their opening me up again and there is only a 50% chance that it would work.With all these factors I have decided to ride the stem cell pony as long as I can and place my destiny in the hands of the stem cell therapy. Maybe it will require a second trip to Santo Domingo; however, I will cross that bridge when I arrive there. In any event I am pleased with the current quality of life that the stem cell therapy has provided me to this point. I am also indebted to this web site for the wonderful woman who provided information to me about Dr. Grekos (Regenocyte) and his nearby Clinic.
It's choice not chance that determines our destiny!!
Best Bud

barbara
09-28-2009, 03:57 PM
Great news Buddy. Thank you for updating your progress. I agree with you about riding the pony for now. I think you are using common sense in the matter along with your pioneering instincts.

Prior to treatment, were you on the bike at all? After treatment, how did you work up to your present 45 minutes per day? Slow and steady, all at once? I am just curious, not doing a scientific study or anything.

I am very pleased that you were able to connect on this website and make a life saving decision. That statement made my day Buddy. I am very happy for you. Spread the word, have others join the forum so that we can get a groundswell of people involved and doctors like the one that treated you can treat right here in the U.S. Make sure to have them join ICMS too. www.safestemcells.org

Buddy74
09-29-2009, 02:11 PM
Hi Barbara: In answer to your question. Before my stem cell procedure I would on those days I felt up to it ride my stationery bike at it's lowest setting for two or three ten minute periods even though it might tire me out. I felt it important to keep my legs moving as you are well aware how quickly the body can de-condition without exercise. After my stem cell procedure and the improvement in my breathing I went back to the stationary bike on a daily basis GRADUALLY increasing my time until I am now doing it at about 45 minutes a day, always at the lowest setting. My intent is to increase the amount to one hour and gradually increase the setting, never using a very high setting. I also have at my disposal a Treadmill which I will utilize somewhere down the road (I hope) but that will be after discussions with my cardiologist who is a believer in exercise. I have always been active in my life and weigh about the same as I did when I was in college if not a few lbs less. So it is a matter of lifestyle and attitude. I thank you again for this wonderful web site and where it has taken me and I wish everyone well in their endeavor to find ways to lead a better life.
Best Bud

Buddy74
10-23-2009, 01:02 PM
Hi: On Thursday, October 22 I went for my three month check-up at the office of Dr. Grekos in Bonita Springs, Fl. My meeting with Dr. Grekos went quite well. The three months test showed my ejection fraction had moved to 28 from a base of 20-22 prior to the stem cell procedure. I look for improvement in this area during the next three months when I go for my six month check-up. The main improvement has been the slow but consistent improvement in my breathing. I now do 45 minutes each day on my stationery bike without a great deal of effort. It seems that my EKG showed that my "total" atrial fibrillation has has worked its way down and my irregular heart beats are much less plentiful. This corrorborated the findings of my Pacer Clinic quarterly check-up just a week ago. In addition my Pulmonary Hypertension reading came down to a near normal reading of 31. About seven months ago. Better blood flow can do that. A Pet Scan taken at my next check-up will tell if any new blood cells have have formed in the area of my scar tissue.
Seven months ago I w2as told that I had just about reached stage 4 relevant to my heart failure and I was told that there was not much more from a medical point of view and that my time was reaching a limited stage. Dr. Grekos believes that I have just about reached Class 2. Although I still have some issues, the Stem Cell process through Dr. Grekos and Regenocyte has given me a better quality of life and I am grateful for that. I look for continued improvement over the next few months. I am also a disciplined person and watch my weight and what I eat and exercise each day, although not stremuosly. I also have a wonderful loving partner in Carol. Each day is a blessing. Have a great day everyone!
Best..Bud

Buddy74
10-23-2009, 01:06 PM
Hi : There is a bit of redundancy I see in my post "about severn months ago".....well you should be able to follow the trend of thought even with that miscue.
Bud

barbara
10-23-2009, 04:55 PM
Buddy - I love hearing from you especially when you are feeling better. Keep up the good work. Next you will be bicycling across America!

Cynthia
10-23-2009, 05:13 PM
I've been following you Buddy and you are my hero! I'm so happy that you are having positive results and feeling the difference. How's that dance coming along?

Buddy74
10-23-2009, 05:25 PM
Hi Cynthia: Thank you for your thoughts. With regard to the dance...I will be taking Carol to the "Snowflake Ball" on December 12 and we shall dance the Waltz through the night.
Best Bud

Cynthia
10-23-2009, 05:39 PM
Oh Buddy,
I am so happy for you!! Tears of joy welled up in my eyes at this great news!!! Here's to the beautiful Snowflake Ball..... dance the night away!!

Buddy74
12-16-2009, 01:38 PM
On Saturday last, I did dance a waltz with my lovely Carol at the "Snowflake Ball"..although it was not as graceful as I would like I suspect I shall do better at the full dress "Valentine's Day ball" at the ballroom of a club we belong to. I am doing quite well as my breathing continues to improve slowly but surely. I will be having my six month tests and evaluation in January with Dr. Grekos in Bonita Springs, Florida and I shall kepp you informed. There are always issues but life is good! Remember, nothing happens unless you make it happen. Have a happy holiday!
Best Bud

Cynthia
12-17-2009, 07:03 PM
Hey Buddy,
Happy Holidays!
What wonderful news! I am so glad you enjoyed yourself at the Ball! What is the difference you feel when dancing pre and post stem cells? Can you rate the way you feel compared to when you use to dance regularly? I hope you and Carol are practicing everyday in preparation for the Valentines Day dance.
You are most inspiring. I appreciate you taking the time to let us know how your first dance went.
I wish Dr. Grekkos could do for hearing loss what he has done for the cardio system.

Best always,
Have a wonderful Holiday season,
Cyndi

Buddy74
02-04-2010, 01:22 PM
Well, I completed my six month tests and meeting with Dr. Grekos of Regenocyte in Bonita Springs, Fl. I am reminded of the beautiful opening words of Charles Dickens "A Tale of Two Cities".

"It was the best of times, it was the worst of times;
It was the age of wisdom; it was the epoch of belief;
It was the epoch of incredulity, it was the season of light;
It was the Winter of despair; It was the spring of hope.

First the good news. The Stem Cell procedure has done well by me. I may not be the king of the ballroom dance floor but I have improved. My ejection fraction has increased from a base of about 20-22 to 35. I was previously told by my Cardiologist that it would not move up and there wasn't much more that practical medicine could do for me.
Maybe it will improve to the cherished 40 plus after my one year testing etc. in August 2010. Unfortunately there are other areas that come into play. My blood work does show areas of concern which I will have to try and address. I am also in total Atrial Fibrillation. These conditions are generally connected to my basic coondition which is of course Chronic Heart Disease.
I was given a drug known as Amiodorone for my Atrial Fibrillation. I am familiar with this drug and have had a couple of friends who have taken it with dire consequences. It is listed as a drug of last resort with many serious and potentially fatal side affects. Of course there are people who take it and who do well with it. I wonder if anyone on this forum is taking it? The American Heart Association Forum has a Thread on it with some fearsome stories.
By the way it is not fully endorsed by the FDA. It can be a life saver but it can be a life taker and more importantly to me it cvan be a taker of quality of life and even when one goes off it you can have it in your system for up to a year. I took it for four days and decided the percentages of adverse reaction was more than I desire. Quality over longevity is my goal and I shall take my chances with my Atrial Fibrillation problems which does include some renewed fatigue. As I said before I will ride the good things that the Stem Cell Pony has provided and address my other problems. I will discuss Amiodorone with my Hematologist regarding this drug of "last resort". I don't lose any sleep over it but I have noticed a return to some of the fatigue I previously had.
To this point the Stem Cell Procedure has done well by me and I am up-beat regarding my immediate future. Every day is a beautiful one and my Bluebird of Happiness has not deserted me when I have Carol and a wonderful family although they are spread all over. For those of you who have flown in small planes life is like a cloud. The beautiful puffy Cirrus clouds embrace you with their beauty and glow. The formidable Cumulus and Angry Nimbus clouds with their darkening aura tell you to beware of what lys within. Such is life..we can never be certain of what's around the corner. Life is good and I want to thank this wonderful web-site for showing me the path to Stem Cells. I am proud to be a Stem Cell Pioneer. See you in six months!
Best Bud

barbara
02-04-2010, 03:18 PM
Buddy - Thanks for the report, but please don't stay away for 6 months!

Buddy74
02-06-2010, 09:50 AM
Hi Barbara: I should clarify the six months statement. That's when I have my next evaluation with Dr. Grekos and Regenocyte regarding the Road to Santo Domingo and the stem cell process. I enjoy this web-site and will continue to learn more from this wonderful site you and Jeannine provide and I hope to contribute.
Best Bud

barbara
02-07-2010, 12:01 PM
Thank goodness Buddy. I didn't want you to go away for 6 months. Many of us on here are expecting you to teach us some new dance steps.

Buddy74
02-16-2010, 02:46 PM
Well Barbara, I attended the Valentine's Day ball at a local Yacht Club last Saturday and I did do a somewhat out of step waltz and of course the obligatory fox trot. However, the best was yet to come...by Midnight I was fast asleep and in the shadow of my dreams I danced the most wonderful Argentine Tango one could imagine with my beautiful and graceful Carol.

barbara
02-16-2010, 03:08 PM
Buddy, you are quite the Valentine. I couldn't even dance a waltz in my dreams, let alone something called the Argentine Tango. I think it is time for you to get a job at Arthur Murray's.

Buddy74
02-05-2011, 03:34 PM
Well it's been a bit more than a year and a half since I had my Stem Cell Procedure in July of 2009 and I am still around. Last Saturday, January 29, 2011 I attended a Regenocyte reunion of 32 Stem Cell Pioneers who live somewhere in the general geographic area. We were treated to a lovely lunch at a fine Naples restaurant. All of Dr. Grekos staff both here in Florida and Santo Domingo were on hand and it was a very heart warming event.
Next Saturday I will be attending the St. Valentine's day dinner dance at a club we belong to and it should be fun. There will be no Tango this time but I will dance a fox trot with my lovely Carol. My breathing is still somewhat short of expectations and I spend a lot of time indoors. However, we are situated on the water near the Edison and Ford homes here in Fort Myers and the weather of late has been spectacular and I often sit on our balcony reading a wonderful book or chatting with friends and I am happy. Each day is a beautiful day especially with Carol and the family I have including 8 young grandchildren. I don't think I would be here today without Dr. Grekos and my stem cell procedure. I am also grateful to a Naples Fl. Electrophysiologist who was able to use a procedure utilizing my pacemaker implant to perform a Cardioversion and take me out of Atrial Fibrillation and also had the skill to move a wire within my heart to restore Resynchronization of blood into and out of my heart. The Cardioversion is most probably not a permanent thing but it has lasted some six months and has helped a lot. There are still a lot of Stem Cell trials in the works. I researched the avenues open at the time and I know I selected the best venue asnd Doctor for my condition. Be careful of some of these new stem cell trials as they are what they state..a "trial"..a test. They include very few "crossovers" offered so in fact you may go through a very unrewarding trial procedure and find that you may have only a one in three chance of even receiving the stem cells they are testing. The rigors of the trial and testing just to be accepted may be very time consuming and physically difficult. I think the FDA is probably 6 to 8 years away from actually allowing and having set Stem Cell procedures even though many of these procedures have been shown to help and save lives. Still...nothing happens unless you make it happen and options are there right now. Good luck to all and make an effort to be positive and pro active with your health. As iI have said..Nothing happens unless you make it happen".

Best Bud

barbara
02-06-2011, 07:49 PM
Thanks for the update Buddy. I agree with you completely about some of the
clinical trials offered. I cannot even imagine going through what participants go through only to find out you were given a placebo. Some trials do not offer the actual treatment after the trial is complete to those that got a placebo either.