New Member

[TWIGS]

I was diagnosed with severe COPD just as I turned 50 and have never stablized. Several years later I found I also have an Alpha 1 deficiency (carrier). I retired a couple of years ago at age 52. Recently, I began weekly infusions of Aralast (anyone else having this?). This is not a cure, nor will it make me better, but hopefully will slow down or halt my decline. A year ago, I was evaluated for a lung transplant, which seems to have terrible odds. Luckily, I'm not at point yet, and am searching for alternate treatments to avoid lung transplant.

I was pleased to happen upon the Stem Cell Pioneers cite and became a member after reading the posts. In researching stem cell possibilities, Dr. Grekos (Florida) gave me hope. In reading the posts here, I found others who have received therapy offered by him and his associates. A special thanks to Barbara 110808 for responding to my questions for pulmonary disease and her treatment by Dr. Grekos. I now feel more at ease with my preliminary choice. My next step is to find the cash and hock the house. Seriously - but I think it will be worth it.


Thank you to all that share their experiences and knowledge in the quest to better health!

[Jeannine]

TWIGS

Proceed with caution. It is an extraordinarily large amount of money. I advise you to wait awhile as it's still early in Bev's results.

I would never spend that kind of money unless I was 100% guaranteed I would be cured. Nothing personal against Dr Grekos or anyone else but I learned the very hard way which cost me a bit of money.

[Ed in NH]

Just curious. How much $$$ are we talking about here?

[Jeannine]

Ed

Let's just say more than 40k

[barbara]

Dr. Grekos says cells must be delivered where they are needed. I think this is an important part of his treatment. It will be good to continue to follow the members who have gone there.

[TWIGS]

I agree its a lot of money, and I certainly am in no position to pay out over $55,000 plus travel. Proceeding with caution per suggestions, but the results do seem amazing. I've requested the Clinical studies that are available but haven't received them yet. Will advise.
Twigs

[Jeannine]

TWIGS

When I first went for stem cell treatment almost 2 years ago with Barb we both saw significant improvements within the first 3 months. Read some of our earlier postings and also our book we wrote. Almost two years later, the improvements have worn off for the most part at least in my case. I still am improved over what I was before stem cells, but now I seem to be sinking back into needing O2 all of the time.

I know how much of a financial sacrifice it is to pay for these treatments so I don't want anyone pinning a cure to any treatment at this time. I really believe the cure isn't far away.

[Judy3]

I went to Dr. Grekos for Pulmonary Fibrosis. [I] was very impressed with him and he is the type of person that would not tell you he thot he could help you if he couldn't. I think the earlier you can get treated with the stem cells the better. He told me I might not get any better but he thought that he could at least keep me where I am. well, some things are better. Go for it!!!!! I felt my kids and the government would both squander my money so I might as well try to help myself. It is a lot, but well worth it.

Judy3

Had treatment Oct 26,2008

[TWIGS]

Judy3, could you share what is improved or anything about your treatment? (In addition to the COPD and Alpha 1 deficiency, I have the beginnings of fibrosis from a couple of bouts of pneumonia last winter.) I would sincerely appreciate any info from anyone treated by Dr. Grekos. Thank you.